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57349088 No.57349088 [Reply] [Original]

I got diagnosed with celiac via a blood test. Anyone here know that feel? What do I eat, especially in restaurants?

>> No.57349096

also if I stop with the gluten, how long until I feel better?

>> No.57349355

>>57349088
Start eat lotf of animal fat and gelatin rich meat to heal

>> No.57349540
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57349540

>>57349355
that's probably the worst part, I don't have a gallbladder either so I have to be careful with high fat.

>> No.57349582
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57349582

>>57349088
RIP. Gluten-free foods, especially breads, are fucking disgusting.

>> No.57349617

>>57349088
No, but once I got diagnosed with lymphoma through blood test and others. Count your blessings

>> No.57349647

>>57349617
How are you feeling now? My dad is in remission about 10 years. Round of chemo, then rotuximat (s/p) infusions, now I think they have some even better stuff.

>>57349582
I haven't really tried the bread. The pasta I tried at home was okay. I ordered gluten free pasta at a restaurant the other night, they had an option for $4 to "upgrade", and it came out really undercooked. I noticed at home gluten free pasta needs longer cooking times so they probably didn't know that :/

>> No.57349710

>>57349647
Dump all that gluten-free bullshit. There are ways to make normal food that doesn't have gluten in it.

>> No.57349734

>>57349647
Doing well thanks. It was a wild ride. Now waiting eagerly for the bull run like everyone else :)

>> No.57349763

>>57349734
Glad to hear it!

>>57349710
Yeah, I think I'm going to have to just try to avoid substitute stuff and try to eat around it. I had fish the other night at a restaurant, was a bit worried about the sauce but it was probably okay :/

>> No.57349767

>>57349088
>What do I eat, especially in restaurants?
Tacos or fajitas with corn tortilla
Chips and salsa
Steak and potatoes
Chili
Gumbo
Red beans and rice
Soup and salad
Virtually anything vietnamese, just avoid onions sauce
Seafood
Chicken and rice

>> No.57349785

>>57349767
Thank you. If I get stuck at a Chinese restaurant what do I order?

>> No.57349788

>>57349767
>just avoid onions sauce
Goddamnit. It was supposed to say SamOliverYankee

>> No.57349813

>>57349785
Chinese restaurants are harder because they put onions sauce in most everything. Just avoid brown sauces when you eat chinese.
Vietnamese and japanese are generally good places where you can eat most things. Same with mexican restaurants if you stick to corn tortillas

>> No.57349824

>>57349813
>onions sauce
SamOliverYankee sauce

>> No.57349843

you have to be somewhat careful because some places marinade their meat in onions sauce

>> No.57349907

>>57349088
all these intestinal diseases that are so prevalent now are largely caused by bacterial overgrowth damaging the intestinal wall and increasing endoxin load
you want your diet to consist of foods that absorb in the first third of the small intestine such that there is practically nothing left to feed bacterial populations in the lower intestine/colon
this means you want your carbohydrates to be largely simple sugars, which absorb in the stomach and first third of the small intestine

this means juice, fruits, honey, even table sugar is okay (eg in your coffee)
sweet orange juice (minute maid frozen orange juice is the perfect balance between sweetness and price ime), dates, straight up honey are all very efficient ways to get lots of calories with sugar
for proteins, consume very high quality animal proteins: dairy, meat, eggs, gelatin, etc
these also absorb fairly completely
gelatin is extremely therapeutic for all sorts of gut ailments, buy some gelatin and supplement it (I like to mix it with some honey water in a mug heated in the microwave, maybe some lemon too if I feel like it, dont be afraid to be generous with the honey)
also haribo gummies are a tasty way to get both gelatin and sugar

AVOID AT ALL COSTS: anything that has PUFA (polyunsaturated fats), anything that has added gums (gum arabic, guar gum, acacia, locust bean gum, etc), beans, too many vegetables
gums (and soluble fiber in general) cause bacterial overgrowth and are one of the number 1 causes of so many gut diseases, avoid at all costs
beans contain a lot of soluble fiber, causing bacterial overgrowth (the bacteria are what produce gas, they also destroy your colon)
too many vegetables will also make it to your colon and feed bacteria
many people (including my dad, who *had* ulcerative colitis) report getting better when they cut PUFA from their diet

>> No.57349946

>>57349907
>>57349088
(cont)
after youve followed the above advice for a while and you feel healthier, then *maybe* you can try reintroducing starch
the problem is, celiac is caused by "leaky gut", ie little particles of gluten pass between the cells and directly into the bloodstream, but the same thing happens with starch, especially raw starch granules
these granules get stuck in capillaries, cutting off blood flow and damaging organs over time (including the brain)
considering your gut barrier is very weak, you should be very careful when reintroducing starch, and take special care to make sure its cooked very thoroughly
I would start with only well cooked potatoes or white rice
but again, getting to this point will take a while

>> No.57349974

>>57349540
leafy greens and proteins, potatoes and rick for carbs. sprouted grain bread or gluten free bread

>> No.57349985

>>57349767
>Chili
>Red beans and rice
absolutely retarded advice, beans are the worst possible thing you can eat for gut health and will absolutely worsen any chronic intestinal disease
even mainstream medicine acknowledges this and gastroenterologists recommend affected people go on a low FODMAP diet

FODMAP info: https://www.hopkinsmedicine.org/health/wellness-and-prevention/fodmap-diet-what-you-need-to-know#:~:text=What%20is%20FODMAP%3F,digestive%20distress%20after%20eating%20them.

>> No.57349994

>>57349907
Yeast is not your friend. Eliminate the fungal overgrowths in your stomach/gut/brainstem and you'll change your life for the better. You can do it with 2 essential oils and an amino acid from Amazon. Lookup the NAC protocol or search Cosmic Death Fungus.

>> No.57350060

>>57349907
This is interesting but also very complex. I'll do more research on that, thanks.

>>57349843
Yeah that's what I'm worried about, marinades and such. I don't really know yet how much makes someone with celiac have a reaction, like if it's just a little and I'm back to being fucked or if it takes a bit (like pasta or a slice of bread or something).

>>57349985
Yeah I can't eat those foods, I just know that from trying.

>>57349813
Thanks

>> No.57350446
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57350446

>>57349088
Fuck all these retards and their dumbass advice. I got diagnosed with celiac disease in 2019, and studied chemistry and biochemistry so I actually know what I'm talking about. It takes a long time to feel better. Years of malnutrition has damaged your body and your healing. I had so many problems but after going gluten free, my body started to heal and all the old injuries I had started to go away. First thing you need to do is get proper multi vitamins. Don't get the crappy all-in-one vitamins, get high-quality certified gluten free ones. You cannot eat out, ever unless it is a certified gluten-free establishment. Nobody will ever take your health as seriously as you do and that includes anyone trying to sell you food to make a profit. You cannot eat any non-certified processed foods with more than 5 ingredients on the list. You should eat lots of fruit, veggies, rice, and occasionally red meat. Eat fermented stuff. No more alcohol, ever. The united states food fucking sucks and everything is cross contaminated with wheat. You're going to have to learn how to cook well and efficiently. Life is going to be more work, but on the flip side, your health will be so much better. You also might save money from prepping all your own meals and not eating out and drinking alcohol. Let me know if you've got any specific questions I'll check this thread to respond to you.

>> No.57350495

>>57349088
I know that feel anon.
I had a celiac disease onset when I was only 21. It was the fucking worst at the time but I’ve grown to accept and manage it.
>You will be forced to eat healthier, no more cookies cakes pizza beer etc.
>Buying “Gluten Free” versions of normal foods are very expensive and nutritionally absent of any necessary carbs calories and vitamins
>Going out to eat you can’t think “What do I want to eat?” and will now say “What can I eat?”
>Be wary of sauces and soups, things you wouldn’t think have wheat ingredients
I took a trip to Spain and Italy a few months ago and the food there didn’t affect me at all, so just know the god awful chemicals America pumps into its food might’ve permanently poisoned you.
Good luck fren.

>> No.57350521

>>57350446
https://www.docdroid.net/4H1DgHE/nac-protocol-printable-pdf

Interested to hear your thoughts on this if you have the time to check it out. My wife and I have been doing it for 6 months. It's without a doubt the greatest thing I've ever done for my health. IBS and athletes foot: gone. Add meds, no longer needed. Gum disease: no flare ups, etc ... Some folks with celiac disease have claimed tremendous improvement as well. I'm quite certain it's all related to fungal overgrowth. I do miss bread and beer sometimes though lol.

>> No.57350535

Carnivore diet. It's not a meme at all. But you have to adjust slowly over minimum a month and give yourself at least a few months to settle because you're changing your entire microbiome and enzymatic pathways need up/down regulating. Best thing you'll ever do and you won't crave anything but meat and fat. Eat once a day and you'll have the easiest diet known to man with zero stress.

Or keep eating shit and feeling worse or making life extremely complex with substitutes that will depress you, cost more and are hard to access when out at restaurants.

>> No.57350575
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57350575

>>57349907
>>57349946
>>57349985

Beware of retards like this. A big problem with celiac is that many people think they know how to heal the gut, think they know how it is caused, claim to have healed someone close to them with an unrelated gut disease, ect. It's genetic. The only thing you can do about it is eating well and more importantly avoiding gluten. Celiac disease was everywhere and isn't a just a modern ailment. For many generations there were always sickly kids and sickly people. We now know that most of these people had celiac disease. Do not drink coffee, it is frequently cross contaminated and filled with mycotoxins and pesticides, plus the acidity will stop your stomach from healing as quickly. Haribo gummies are literally made with wheat syrup and are not gluten free. Retard anon is correct about avoiding "gums" which are emulsifiers. These are very much associated with all sorts of ailments, but only eating unprocessed food should take care of it. Retard anon is also correct about beans, not great for gut health in general. And once more, retard anon is correct about a low fodmap diet helping, I followed it when I was recently diagnosed and reintroduced some stuff back in. Beware of oats, as it must be certified gluten free oats. Also, I typically avoid oats because 20-30% of celiacs cross react to a similar protein in oats anyways. Beware of onions sauce, as it contains wheat, which makes all asian food that you don't prepare yourself off limits.

>> No.57350679

>>57350575
chronic gastrointestinal diseases in general are absolutely on the rise across the board in a way that is not explained by genetics
you can easily find data on how theyve exploded in recent decades, colon cancer is most well documented, but theyre all on the rise
if it was genetic, youd have to believe that these alleles swept across the population in a matter of decades (less than a generation), which is impossible

and I already explained what causes celiac: gut permeability which is largely caused by bacterial overgrowth
in reality all inflammatory gastrointestinal diseases are caused by bacterial overgrowth
these so called autoimmune diseases are the result of excess endotoxin (LPS) activating TLR4 receptors which chronically stimulates an immmune response

you also seem to agree with the majority of what I said regarding dietary advice (with some petty caveats), so I dont quite understand the animosity

>> No.57350699

>>57350521
I'm weary but if it works for you then by all means continue. I disagree on the very premise, however, because I had "fungal overgrowth" symptoms that mostly resolved when I went gluten-free rather than treating the fungus infection. This indicates that the fungus overgrowth problem was a result of immune system dysfunction caused by gluten consumption rather than the other way around.

>> No.57350749

>>57350699
Maybe, but most of the wheat foods you avoided are also packed with yeast or yeast extract, so there could be more correlation there. The other anon was touching on the genetic aspects. The authors of the NAC protocol have more research on that and show the various mechanisms from specific bacterial strains (it's in the references, but not expounded in the shortened version that shared). The bacteria producing toxins and inflammatory responses are the biggest ones.

Anyway it's interesting to me because Celiac disease seems so similar to candida and, for some unknown reason, yeast extract (and msg which also causes genetic damage) is added to all sorts of shit in the US, unnecessarily.

>> No.57350779

>>57350679
I'm sorry for being a dick, I was a little bit harsh. I suppose it's an unfortunate quality that many celiacs develop from trying to explain to people what cross contamination is. It's not a simple as "bacterial overgrowth". There are different clads of bacterial colonies that live in human's guts (humans actually have some of the most complex gut bacterium) that each preform specific functions in metabolism. There is an environmental component that is explained by the rise of over processing and pesticide application. Your immune system regulates how much of each clad of bacteria there's supposed to be. Sort of like your gut is a garden and your immune system is the gardener. Leaky gut is part of the equation, but the issue likely didn't start from leaky gut but more so that leaky gut is a consequence of celiac. So "bacterial overgrowth" in the way that you are trying to describe isn't really a thing. Bacterial overgrowth would be found in conditions like toxic megacolon and infections, not so much as chronic gut disease. More like bacterial diversity dysregulation that is caused partly by bad eating habits, immune system malfunction from pollution exposure, and bacterial colony damage from pesticides.

>> No.57350833

>>57349088
isn't that a horse disease?

>> No.57350834

>>57350749
Yeah see this is part of the problem. Yeast for extraction purpose is often grown with wheat derived ingredients, so the problem was never yeast, but gluten in the first place. I had problems eating mushrooms for years, but when I grew them myself from wood chips, I was able to eat them again because store bought mushrooms were contaminated with wheat from mulch they used to grow mushrooms. I agree that mycotoxins aren't insignificant in regards to human health, but most of the time it appears that it's just gluten cross-contamination in people with undiagnosed celiac or gluten sensitivity. Repeated candida infections is literally a symptom of celiac disease, and treatment of celiac often results in remission of candida related symptoms. Mine didn't actually completely go away, so I might try the NAC protocol, but I also still have celiac antibodies circulation even though I'm extremely strict so something else might be going on. I also have pretty much the worst case of celiac disease that's ever been described, so I might be an outlier. MSG is actually completely safe. It's just a sodium molecule and a glutamate molecule (an amino acid that has no relation to gluten) and is actually perfectly safe to consume in reasonable amounts and is nice to add to your gluten free food to make it taste better lol. It's made typically from either boiled down kelp (traditional way), but can also be made from boiled down mushroom mycelia and vegetable waste (cross contamination opportunity). It all depends on how clean the source you get it from is.

>> No.57350881

>>57349088
>>57350446
>>57350575
>>57350779
>>57350834

Anyways you get the point OP. You've got two options: one, you can follow my advice and end up well or two, you can try and follow everyone else here and waste your time wondering why you don't feel better after years and just end up following my advice again. Be more strict than you have to, don't let anyone else guilt trip you into eating something risky. Don't eat out, no coffee, no alcohol, be kind to yourself.

>> No.57350910

>>57350834
Ya, I avoid all mushrooms and as much msg as possible now myself, (and I won't go off on an msg tangent) but I'm always interested in hearing others opinions and experiences. I think it probably all is related to fungal overgrowth, mostly because of the research the past few years supports that premise, namely: strains that were formerly considered as being in a "commensal" state, are in reality cause inflammation and damage (including gut permeability).

With that said, I'm not well read enough nor have the medical background to pretend I know how every strain in every gut is going to react lol. Some strains keep other's growth in check. Some are new hybrids, some haven't even been identified yet. There's a lot of variables there and there could be some new discoveries about GMO wheat or something that explains celiac disease better. Who knows?

Thanks for the intelligent response.

>> No.57350960

>>57349088
I had hypothyroidism and leaky gut 4 years ago, the year before Covid. The entire year was hell. I couldn’t eat anything but meat and veggies. If I ate sugar or refined carbs I couldn’t walk straight for half the day. Spent an entire year trying everything under the sun to get better. Every so often I would see on comments of people saying “do urine therepy” in videos totally unrelated to urine therapy. And I didn’t even know what that was. And would continue scrolling. Then one day I saw a comment saying “I had celiacs disease and did urine therapy and it cured me.” Well, I went down the rabbit hole…and said fuck if and started drinking my urine. Because I’m a live to eat type of guy and I’m not gonna spend my life not being able to have a pizza again. After a week of drinking my urine I was eating a large pizza like I used to without a single trouble. The thing that had me in the bathroom 5 mins later doing it is learning that urine is not waste like we’ve been lied to but ultra filtered blood plasma. So if you think it’s waste you’ll want to vomit. But once I learned it’s filtered blood plasma now my brain views it as bitter medicine. Now anytime I get sick or have issues I drink or topically apply my urine and it fixes it fast.

Just recently…there is a guy I play poker with who I’ve never said a word to in 2 years because he so closed off and mean looking. Well about 2 months ago the table was talking about health stuff and he’s like I got Lupus. I was like ooooh now I know why he’s like that. Told him about it. Sent him a good article. He started doing it. 2 days later I see him and he’s like dude…. My lightheadness is gone. I was like whoa. That’s great. Didn’t know he was light headed but that’s obviously why you would be constantly in a bad mood. Well he kept doing it. Dude has all his energy back…all his bloods are better. And yeah he’s all better

>> No.57350983

>>57349088
Also if you want me to find the post of the guy saying he doesn’t have Celiacs anymore I can be bothered to go find it… but it’ll take a little time

>> No.57351071

>>57350910
But none of the good quality research actually does support fungal overgrowth as being the cause over the symptoms, especially if they didn't control for patient gluten free diet adherence to exclude non-gluten-free yeast extract. Not to mention that if candida overgrowth was the only issue, antifungals would be a rather effective treatment, which they're not and often make stuff worse. There are many molecular mechanisms that support that a leaky gut helps candida flourish, but none the other way around. Moreover, the issue of candida isn't so much the issue with the fungus its self, but more of the bodies immune system keeping it in check (garden with gardener analogy), which comes back to the immune system. The immune system is still dysregulated, which causes leaky gut and candida growth. By treating candida growth you are only treating the symptoms. Fixing the immune dysregulation by adhering to a strictly gluten free diet is the best you can do. A lot of these "hidden gem" gut health theories are just beating around the bush and doing mental gymnastics to find something else to blame for gut issues. It's hard for people to accept that there is a more complicated cause of their discomfort other than "fungi are bad" or "avoid processed food and wheat". Also fungi are demonized for every single modern health problem by desperate people trying to find something to blame for their ill health, but honestly have very little role. Think about it this way, humans and their ancestors have had to deal with fungi (and our friend candida) since the dawn of humanity inhabiting our guts, skin, and home. It's unlikely that they're only starting to cause us a problem now. It's more likely to do with our modern diet of wheat, which didn't start until only a mere 20,000 years ago.

>> No.57351175
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57351175

>>57351071
Just gotta drink your urine to heal any stomach or fungal or Candida issues.

Chick I was talking to with big stomach gut issues. Healed. And it happens pretty much instantly.

>> No.57351181

>>57351071
There's been a lot of new research since 2021, but some candida strains can be and are resistant to many prescription antifungals, as well as the more common strains of albicans and cryptococcus. The natural antifungals don't seem to suffer from any lack of efficacy, though they don't work as quickly. Personally I don't think fungi are blamed enough. Problems that are clearly fungal in nature are often dismissed as something else or simply deemed incurable after antifungal treatment because of the prior medical beliefs. Idk how many tubes of prescription creams and new shoes I bought and I still had athlete's foot lol. A couple weeks of oregano oil and a few other supplements, and it's gone. 30+ year infection, gone. I didn't get any "cleaner" or use different socks. It was internal overgrowth that my doctor's were trying to treat with topical creams, because they didn't believe in common fungal growth as being the cause. They were taught it was commensal, so the issue must be locsl.

Anyway, I think there's something to it. If you're genuinely interested, many of the articles cited in the link are newer and there's a reddit sub where you can ask the authors directly about stuff too. I'm sure they'd appreciate your input (not being sarcastic). At least 2 of them work in the medical field in some capacity. They like getting technical and are pretty proud of their work. It's going on 3 years now. I assume it will take the medical community a bit to catch up since there's no patents involved lol

>> No.57351192

>>57351181
>Idk how many tubes of prescription creams and new shoes I bought and I still had athlete's foot lol. A couple weeks of oregano oil and a few other supplements, and it's gone. 30+ year infection, gone.

Again. Just had to pee on your athletes foot to get rid of it. Even normies know this.

>> No.57351199

>>57351181

Just drink your own piss like this guy.

>>57350960

>> No.57351206

>>57351199
Amniotic fluid is urine. You sucked it down continuously on the womb. You don’t have lungs or a brain otherwise

>> No.57351323

>>57349907
>>57349946
Thanks, anon

>> No.57351332

>>57349088
It's better than it was 10 years ago. Used to be nothing for us, now there's some good brands of gluten free stuff and lots of restaraunts accomodate it. Kinda expensive but you'll get used to it.

You won't get to have burritos anymore though, burrito bowls are your new friend. Also for fast food, gluten free buns arent that common still so you have to do lettuce wraps, which even carl's jr can do.

I knew a guy who was 5'9 130 lbs in high school, got diagnosed with Celiac and grew to like 6'3 after he started eating right.

>> No.57351457

>>57349088
Idk but buy Luna Inu.

>> No.57351586

>>57349907
>>57349946
From personal experience, I think this guy is right but I would add that you should do intermittent fasting when your symptoms flare, and get your thyroid checked because hypothyroidism is the cause of most digestive issues

>> No.57351594

>>57350960
You can probably drink less water, and take salt and have the same effect without having to drink your own piss